Government hospitals, including Rajendra Institute of Medical Sciences (RIMS) in Ranchi, are not equipped to treat haemophilia patients in the state and have to source medicines either from Mumbai or Delhi, which is a costly affair.
Two patients, both in their twenties, died last month at RIMS. They were admitted in a critical condition but due to non-availability of factors VIII and IX drugs. Patients require infusion of deficient clotting factors VIII and IX.
According to Santosh Jaiswal, secretary of the Jharkhand chapter of Haemophilia society, the government should have better infrastructure. Till date, the government has not made safe clotting factors available at state hospitals.
There are 300 people suffering from the disease in the capital and a total of 5,000 registered cases with the haemophilia society in the state. The patients are in dire need of drugs that are very costly and cannot be afforded by them. Patients are given Cryo Precipitates, which were available in the blood bank of RIMS.
In other medical colleges in the state, like Mahatma Gandhi Memorial Medical College and Hospital in Jamshedpur and Pataliputra Medical College and Hospital in Dhanbad, the condition is equally appalling. There is no facility to treat critical patients in Jamshedpur.
Sumitro Hajra, secretary of Jamshedpur chapter of the haemophilia society, said Mahatma Gandhi Memorial Medical College Hospital (MGMMCH) has nothing for ailing patients.
"There are 50 patients registered with our chapter (in Jamshedpur). If any such emergency situation occurs, we move the patient to RIMS immediately. We have requested the medical superintendent of MGMMC to establish a separate hemophilia centre in the hospital," said Hazra.
Dr Govind Sahay, chairman of medical advisory board of the haemophilia society said, "Factor replacement is the only cure which can be done in the process of treating of the disease. Presently we have to buy the drugs from the Delhi and Bombay chapter of hemophilia society who in turn buy these factors from World Hemophilia Society(WHS) Canada."
A patient requires 1,000 unit of factors per day in case of heavy bleeding which costs Rs 15000 per day. In acute conditions the cost may rise to more than 20, 000 a day. Till now, state health department has done nothing on its part to bring any relief for the patients. The director-in - chief of health, P Chandra, has made a proposal to the government of India for making the drug available here and is waiting for the approval.
Chandra said, "We have finally sent the proposal to the central government for accessing the drugs at reasonable cost under National Rural Health Mission."
Head of the department of spleen, of Pataliputra Medical College and Hospital (PMCH) Dhanbad, Dr PK Sanger said, "There is no facility for such patients in the hospital. Although there is blood separators but the drugs are not available nor is the hospital equipped for any such facility for handling patients. We refer patients to Ranchi."
Santosh Jaiswal said the state government has sent a proposal of Rs 2.50 crore to NRHM separately, especially for making the drugs available. Earlier, the drug was not included in the Essential Drug List that is meant for life saving drugs. With the effort of hemophilia society, the drug was included in the list. Now the government will be liable for buying the drugs under the fund that is being allotted to the health department. source-http://articles.timesofindia.indiatimes.com